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Who are we

The French association of Crigler-Najjar was created by and for patients and families of patients.

Crigler-Najjar disease is caused by a deficiency of an enzyme in the liver, it is an extremely rare genetic disorder, approximately 1 in 1,000,000 births.

Phototherapy is a treatment using large devices that scatter blue light with a specific wavelength to break down bilirubin.

Despite the extreme rareness of this disease, a European clinical trial CureCN led by Généthon, is underway on a few patients.

No translation is available in this section. Section only in French!